Undergoing Female Surgery

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    Heart problems and vascular issues are very much a part of Williams syndrome. If left untreated, most children with Williams syndrome will never live to adulthood. Back in the early 1960s, they started doing autopsies on every seemingly healthy child that died without any apparent cause. A medical examiner by the name of Williams saw a connection between these children and their cause of death. Most children with Williams syndrome…

  • Upcoming Kidney Surgery

    In order to do a proper followup on my last blog, I had to wait almost a month to get Michelle in with the UC vascular surgeon and nuclear medicine surgeon for consultations. By the time I had the information to do the followup, the holidays were upon us. So here’s an update. Michelle saw a doctor in Nuclear Medicine. They did a kidney function test which showed that her…

  • The Long Awaited Surgery

    Michelle finally had surgery to remove that arteriovenous malformation (vascular growth) from her right kidney – 7 years after it was first noted on some routine imaging for a totally unrelated medical issue and almost a year after I was made aware that it existed. It was a slow process, but it was a successful surgery. We had to report to the hospital by 6:00 am on March 31st. Since…

  • Therapy – an Unproductive Nightmare

    In Michelle’s biography, I talk about how therapy sessions were always counterproductive for Michelle.  So I avoided getting her in with that particular service.  But Michelle was in group homes and with agencies for several years.  The longer she was with them, the more medications they put her on.  And the more medications she was on, the more she dealt with growing anxiety, anxiety attacks, and severe behavior problems.  So…

  • Another Day, Another Allergy

    Medical issues are very much a part of Williams syndrome, and Michelle has been incredibly blessed not to have the heart and blood vessel problems that have been so characteristic of the syndrome. She is now 37 years old, and medical issues have been popping up in her life right and left, so I shall address them. When Michelle moved home on January 8, 2021, she seemed to be having…

  • Michelle’s Biggest Dream

    One of the characteristics of Williams syndrome is that they tend to be gifted in music. Michelle is a big country music fan.  Currently, her favorite country singer is Cole Swindell.  Her lifelong dream is to go to Nashville and “get a record deal.”  Never mind that she can’t sing.  She thinks she sings just fine. She loves to write her own “songs.”  It’s not really a song without the…