The Long Awaited Surgery

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  • Upcoming Kidney Surgery

    In order to do a proper followup on my last blog, I had to wait almost a month to get Michelle in with the UC vascular surgeon and nuclear medicine surgeon for consultations. By the time I had the information to do the followup, the holidays were upon us. So here’s an update. Michelle saw a doctor in Nuclear Medicine. They did a kidney function test which showed that her…

  • A Vascular Growth on Her Kidney

    One of the major physical challenges that people with Williams syndrome tend to deal with are heart and blood vessel issues, often requiring surgery. Michelle was very blessed to have escaped the heart problems and has not had to have any type of heart or vascular surgery. However, on a routine visit to her primary care doctor, her doctor noticed in her records that she’d had a CT scan weeks…

  • Michelle’s Biggest Dream

    One of the characteristics of Williams syndrome is that they tend to be gifted in music. Michelle is a big country music fan.  Currently, her favorite country singer is Cole Swindell.  Her lifelong dream is to go to Nashville and “get a record deal.”  Never mind that she can’t sing.  She thinks she sings just fine. She loves to write her own “songs.”  It’s not really a song without the…

  • Another Day, Another Allergy

    Medical issues are very much a part of Williams syndrome, and Michelle has been incredibly blessed not to have the heart and blood vessel problems that have been so characteristic of the syndrome. She is now 37 years old, and medical issues have been popping up in her life right and left, so I shall address them. When Michelle moved home on January 8, 2021, she seemed to be having…

  • Undergoing Female Surgery

    Although Michelle is 38 years old, she is still thinking on probably an 8 or 9 year old level. With Williams syndrome, she talks very intelligently. So it’s easy to miss her learning disability and not realize that she doesn’t always understand what she’s saying. However, one thing she’s adamant about is that she absolutely, positively does not want to have children. Now Michelle has never been sexually active, but…

  • Therapy – an Unproductive Nightmare

    In Michelle’s biography, I talk about how therapy sessions were always counterproductive for Michelle.  So I avoided getting her in with that particular service.  But Michelle was in group homes and with agencies for several years.  The longer she was with them, the more medications they put her on.  And the more medications she was on, the more she dealt with growing anxiety, anxiety attacks, and severe behavior problems.  So…