Williams syndrome

The Long Awaited Surgery

Michelle finally had surgery to remove that arteriovenous malformation (vascular growth) from her right kidney – 7 years after it was first noted on some routine imaging for a totally unrelated medical issue and almost a year after I was made aware that it existed. It was a slow process, but it was a successful surgery. We had to report to the hospital by 6:00 am on March 31st. Since…

Michelle’s First Cruise

Michelle enjoys traveling with us, but she had never been on a cruise. Floyd and I took a cruise back in February, 2020, and we loved it, so we wanted to take Michelle on a cruise. Of course, boat rides can cause problems for some people, and we didn’t know how Michelle would respond to it, so we booked us a little 5-day cruise to the Bahamas. It was just…

Williams Syndrome and Vascular Issues

Heart problems and vascular issues are very much a part of Williams syndrome. If left untreated, most children with Williams syndrome will never live to adulthood. Back in the early 1960s, they started doing autopsies on every seemingly healthy child that died without any apparent cause. A medical examiner by the name of Williams saw a connection between these children and their cause of death. Most children with Williams syndrome…

A Vascular Growth on Her Kidney

One of the major physical challenges that people with Williams syndrome tend to deal with are heart and blood vessel issues, often requiring surgery. Michelle was very blessed to have escaped the heart problems and has not had to have any type of heart or vascular surgery. However, on a routine visit to her primary care doctor, her doctor noticed in her records that she’d had a CT scan weeks…